Last week I traveled up to the Mayo Clinic in Rochester, MN with my sister Kamlyn. Really the whole purpose of this trip was to get acquainted with the doctors, have all my tests ran through their facilities and to get on the list for Phase 3 of the stem cell clinical trial that will be starting up this year. The Mayo Clinic will be one of the facilities around the country that will be involved with this trial. Having all my tests done here as well as being considered a patient at Mayo should increase my chances of getting accepted for the trial. That being said there is still only a very small chance that I’ll be picked.  I want to say that only 34 people were chosen to participate in Phase1 and 48 people for Phase 2. Don’t quote me on that though.
Here’s some more info on Phase 3 of the stem cell treatment and Brainstorm’s NurOwn.
In the meantime I’m working on either heading to Japan to try a different form of treatment known as Radicut (aka Edaravone or MCI-186) Radicut was approved for Treatment in Japan in 2015but is currently not approved for use in any other countries. From what I’ve read the FDA is supposed to vote on allowing this drug for use in the US this June. I won’t hold my breath…
What is Radicut?

According to the company, Radicut is a free radical scavenger which works to remove oxygen-containing molecules, which build up in people with ALS and other diseases. This antioxidant approach is thought to provide neuroprotective support to the nervous system, potentially slowing down disease progression or limiting additional damage altogether.

I’ve got nothing to loose so I’m going to try and get my hands on some. Whether that’s traveling to Japan or trying to import it I’m not sure yet so I’ll keep you posted.